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Lyla’s Medical Needs

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My granddaughter, Lyla who is ten and lives in Michigan, was diagnosed with a fairly large anerismal bone cyst tumor on her neck, specifically between the C2 and C3 vertabrea.  This occured June 19th and on June 29th Lyla went into surgery to freeze the tumor (cryoblation) which is shown to be more effective and safer treatment than just surgically removing it.    

After 6 hours of surgery, Lyla didn't wake in the expected amount of time and began having trouble breathing. They had to intabate her again and rushed her into a MRI and found that her spinal cord had been damaged by the freezing temperature extending to the spinal cord.   This has never been a complication from this type of procedure before.  The injury to her spinal cord caused her to not be able to breath on her own and be paralyzed from her neck down.

On July 14th Lyla made a big step towards moving out of ICU with a tracheostomy. She still requires a ventilator attached to her trach as well as a GI tube for nourishment.  She should soon graduate from PICU (Pediatric Intensive Care Unit) and move upstairs to inpatient rehab where she is expected to stay approximately 4-6 weeks, possibly longer.

When we visited Michigan last week, we were able to go to the arboretum near the children’s hospital.  From the little hill we could see her room but she couldn’t see us yet.  Maybe when she gets to rehab she can look at us through a window.  We were able to visit separately with her parents who have been staying at the hospital.

Her parents have accrued and will continue to incur medical bills.  They will need to have a handicap van which will be an additional cost.  Also, they need to modify their home making a bedroom and a handicap bathroom on the main floor. These costs are above what their insurance will cover and what they can financially handle. We are asking for your help and seeking donations to help cover some of these out of pocket expenses. We are starting our fundraising goal of $75,000.

Some days are harder than others for Lyla.  She has anxiety and this is a whole new area which she needs to work through in life.  As she put it, “I’m tired of this paralyzation.”

With a little help, we can make this burden lighter. Your help will help her parents focus on her needs and getting the home and transportation ready for her.
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Donations 

  • Rebecca Kiser
    • $250 
    • 3 yrs
  • Joanne Black
    • $200 
    • 3 yrs
  • Anonymous
    • $100 
    • 3 yrs
  • Julia Lupan
    • $20 
    • 3 yrs
  • Ann Morimoto
    • $100 
    • 3 yrs
Donate

Organizer and beneficiary

Pamela Boynton Christie
Organizer
South Riding, VA
Jennifer Christie
Beneficiary

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