Peter & the after affect of Covid.

About 5 Years ago Peter went out in the garden as we was getting the garden ready for summer.  It was mid day and was starting to burn by the sun, he had only been out 10 minutes.  He started to go very red and looked like a lobster, he was saying that he was sore and we couldn't touch him.   We gave him antihistamines to help with the soreness and tried to cover him in aloe vera, to which nothing worked.Peter Tried again the next time it was sunny and it happened again only this time he was worse, he got little blisters on different parts of his body. Peter couldn't cope anymore, so we went to the doctors and they told us they will increase the antihistamines and see how he goes,  but it didn't get any better and we kept going back and forth to the doctors with no luck.After a while we started noticing that he was getting burnt thought the windows.  if the sun just shined through the blinds it would mark him,  Peter started to sink to depression more and more due to not being able to go out or do anything with myself(wife) or our kids (Aimee now 18, Jessica 17, Jack 15 & Tom 9).Peter became a prisoner in his own home with the curtains shut all day, his health was deteriorating due to the lack of vitamin D from the sun, he had to wrap up like it was winter in the antarctic, to which he would get all sorts of people steering and saying horrible things to him or just wouldn't serve him in a shop if i managed to get  him out.  It's not a life i would wish on anyone.I got to the point where i would hear him cry at night when he through we was all asleep, the next time we went to the doctors i told them that something needs to be done as it's not fair on either of us or our kids, as Peter was missing out on so much with the kids and not making any memories.  I felt sad for Peter because i was the one always going places with the kids and see them achieve things, like our son in the christmas plays or a reading in an assembly or parents evenings at school.The doctors referred Peter to Manchester Hospital to where he had to travel down by car and stay over a night due to talking about what we went through and what they do and what they wanted to do(test wise).We were happy that somebody was going to help Peter in anyway they can.  Peter also had a few other things wrong with him, he is partially sighted in one eye, he has Ankylosing Spondylitis in his lower back, shoulder and knee gives way to which he uses a wheelchair. he is also partially deaf.  The next time we went to Manchester Hospital we needed to stay over for 4 nights as Peter when through so tests that lasted a few hours a day over 4 days, he was also prescribed really high antihistamines and then we had to wait for the results.  It was hard to find the money to stay over as we had to pay for diesel to get us to manchester in our motability car and find money for the hotel say, we had to ask family to help with looking after the kids while we was away.This where we found out that Peter had what is called "Solar Urticaria" and  is also allergic to UVA & UVB and other visible light.  They told us that he 1 in 10 of their rarest cases in the uk. They talked to about other medication and what to wear clothes wise and that we would need more tests later in the year.From here we found a group on facebook that was helpful in meeting new people from around the world that also have this condition as to which each one of us suffers a little different from the other.We spoken to the Professor at Manchester about an injection that could be given if Peter was bad enough to have it.  They gave us all the info we needed to read and we looked at the pros and cons and asked all questions we needed.We also traveled to Manchester to have a test to that they can do a little more research in this condition and to help put forward Peter's case to have the injection.We are raising funds to help with travel costs and hotel costs, we would also like to to raise fund to buy new clothes for Peter that are sun protective.  One long sleeve top costs £35 and he would need a few of them along with a few other clothing items.   The other thing we would like help raising funds for is help into the price of the injections that are given, they cost £10,000 a year per patient.We would like to be able to go on holiday all together and to be a normal family, but this can't be achieved as yet.